World RARE Disease Day is coming up on February 29th.
Did you know that 1 in 10 Americans are affected by RARE disease and more than
350 million people are affected worldwide. 75% of RARE diseases affect children
and 30% of children with a RARE disease will die before their 5th
birthday.
Do these statistics astonish you? Can you help us raise
awareness by posting? The Global Genes Project is a grassroots effort to bring
more awareness to the rare disease community as more awareness will lead to
more support and funding which will aid in developing treatments and cures.
Currently only 5% of rare diseases have any sort of treatment; there are no
cures.
Call to actions:
- Join the "1 Million
for RARE" movement and like the Global Genes Project Facebook page:
http://www.facebook.com/
globalgenesproject
- Tweet with us @GlobalGenes.
Use #1Mil4RARE
- Forward this to a friend!
Just by sharing the message you will be helping to raise
awareness as we head into World RARE Disease Day on February 29th. We (and the
rare disease community) thank you for listening.
Thank you for supporting Rare Disease Day and sharing your story! My son Gage passed away from a rare genetic disease called early-onset LAL deficiency (also known as Wolman disease) in2009. Rare Disease Day means so much to the millions of people and families affected by the approximately 7,000 rare diseases. Thanks again! Mary http://www.lalsolace.org
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